For over 45 years, the Slovenian Hemophilia Association has been connecting individuals with bleeding disorders, their loved ones, and medical experts, striving for better care and greater awareness of these conditions. This year’s World Hemophilia Day (April 17) is dedicated to women and girls, as bleeding disorders in them are often overlooked or misdiagnosed.
In Slovenia, the number of women and girls registered with congenital bleeding disorders is statistically too low. The actual number is likely higher due to unrecognised symptoms. Heavy menstrual bleeding, fatigue, anemia, and other health issues can significantly impact the quality of life for women of all ages.
An exhibition, prepared in collaboration with Ljubljana Tourism, aims to shed light on the challenges faced by women with bleeding disorders, encourage early symptom recognition, and ensure better access to modern treatment and psychosocial support. Its goal is to make sure that no woman with a bleeding disorder goes unnoticed or without proper care.
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